Updated 9th of Feb 2005

Over 4 years have passed since we first started to put this web site together.  Our group of HLHS families have grown.  We now have families listed in all states and we are like a big family, sharing news and updates of all the extra special HLHS kids.  One of our parents Csaba Ovari has also set up a web site that will share more information and support.  He has kindly set up an email support list for us of which we have, at the time of writing 25 families listed.  There is also a support list for families that have lost their child to Congenital Heart Defects.  Just use the support button to the left and you will find the information there to join these lists.  So please be sure and visit Csaba's  site (Australian HLHS information network).  Where you will also find contacts for other Australian families that have HLHS children.  If you need more information please feel free to email me by using the email button to the left.

Deb Rennie.